I hope I’ve done this right - and my son is a bit older so I apologize if I’m at the wrong place.
Several years ago, my 9 year old son was diagnosed with femoral retroversion. We saw a pediatric orthopedist every few months for awhile, but once my son’s pains were resolved (we were given a stretch and chipmunk shoe inserts), we were discharged from his care.
He did request my son be checked for a heart murmur to rule out ehlers danlos. Our pediatrician automatically sent us to pediatric cardiology. They saw nothing, but agree he’s quirky enough that they didn’t feel confident ruling anything out. They sent us to a connective tissue specialist. She noted some low muscle tone but again, nothing significant enough to warrant further testing at this time.
In the last year his kneecap on the same knee began moving, pretty significantly, back and forth. Our pediatrician sent us for PT where we learned why this happens with femoral retroversion. We saw the pt for several weeks and have since continued the exercises given to my son.
We tried to do the exercises every other day, but I noticed regressions in my son’s progress, so now we typically do 2 days of exercises and 1 day off. We’ve been doing these exercises since May and several of the exercises are still very difficult for my son to accomplish.
Should he still be struggling with some of these exercises (particularly lunges, side steps with resistance bands, wall sits, and others)? My son struggles and cannot keep up with other kids his age (or his 6 year old brother)… he’s quirky enough that I feel his pediatrician doesn’t necessarily know what route to go, but definitely not severe so I feel all of the specialists kind of dismiss our concerns.
Thank you for listening and any opinions you may be able to offer!