Hi! I have a 15mo old daughter who was recently diagnosed with hypotonia and diminished reflexes. Some background- at 6 m she was sitting up, at 9 mo she was rolling, at 12 mo she wasn’t crawling yet so we started PT and she quickly picked up the 4 pt crawl, now at 15 mo she has just started pulling to stand, cruising, walking while holding on to finger tips. All other development (fine motor, verbal, social) is on track according to our EI program.
The PTs that I have talked to seem to think this hypotonia is something some kids have and she will just need to work harder on muscle development…the neurologists seem to think it is a really major sign that she has an underlying condition (she is currently undergoing blood work).
This whole process has been so overwhelming for me. I have no clue what to expect…will she start walking soon? Will it be years? Will she be able to participate in sports?
I am wondering if you can provide an idea for how long milestones might take for a child with hypotonia. What sort of things can I encourage at home to help her? Do you have any suggestions for trying to prepare for a diagnosis for my daughter?
I find your Instagram page so helpful because you address hypotonia. Prior to this I had never even heard of it before. I don’t know whether this is just something she will adapt to or a sign of worse news to come. Thank you did your advice!